“It is not in the stars to hold our destiny but in ourselves.” William Shakespeare Lately some good friends have encouraged me to consider a whole person approach to not only ALS, but life in general. Ever since I found out I was living with this condition, I became obsessed with science as it relatesContinue reading “Zooming Out”
Author Archives: guyinawheelchairwithatweedjacket
Under Pressure
Mistakes and pressure are inevitable; the secret to getting past them is to stay calm. Travis Bradberry Y’all, I did a thing. I applied to Temple University and I got in. For the Fall Term. Like in 3 months I will be in college again. Matt has been bugging me for years to go backContinue reading “Under Pressure”
Another Clinic Visit in the Books
“The anticipated pleasure of success gets us motivated and keeps us motivated. But we need to let our rational plan dictate how we will get there.” Denise Cummins, Ph.D. So I had my clinic visit last week. It still has to be virtual because of Covid restrictions. I decided to ride the elliptical on theContinue reading “Another Clinic Visit in the Books”
FDA
“Government’s first duty is to protect the people, not run their lives.” Ronald Reagan On to ALS enemy #2 – U.S. Food and Drug Administration. So much could be said about this bureaucratic quagmire. It’s a behemoth of an organization that is so confusing and has an unbelievable amount of red tape. It seems, fromContinue reading “FDA”
ALSA
“People can tell you to keep your mouth shut, but that doesn’t stop you from having your own opinion.” Anne Frank PSA: This is my opinion. Caitlin’s opinion. Matt has advised me otherwise, but a lot of times I don’t follow his advice. My feelings about ALSA. Let me preface this – I am talkingContinue reading “ALSA”
Brainstorm
In a world with no shortage of opinions I am not going to burden you with another one. I have been getting a lot of questions about Brainstorm and Nurown this week. I don’t know anymore than you do. I can tell you that the company treated me with as many injections as they couldContinue reading “Brainstorm”
Leaving a Legacy
“Immortality is to live your life doing good things, and leaving your mark behind.” Brandon Lee I need some help. I’m at a loss. I have an idea and no knowledge of how to make it a reality. For those of you who do not know Matt or me that well, we love plants. MattContinue reading “Leaving a Legacy”
To my friends
Nature works for its own interest and looks to the profit it can reap from another. Grace does not consider what is useful and advantageous to herself. Thomas Kempis There is a school of thought that every human impulse is the result of nature and evolution and that while we think we have free will,Continue reading “To my friends”
Moving Forward
“Life is a balance between what we can control and what we cannot. I am learning to live between effort and surrender.” Danielle Orner Hello people! So the year of the 2020 blog obviously did not happen for Matt and me. Started off decent and quickly fell off. We were busy but I can’t pointContinue reading “Moving Forward”
If You Can Dream
If you can dream — and not make dreams your master;If you can think — and not make thoughts your aim;If you can meet with Triumph and DisasterAnd treat those two imposters just the same. Rudyard Kipling I have to apologize. It has been a busy summer so we have not had a lot ofContinue reading “If You Can Dream”
Tweed Thoughts 