“Life is a balance between what we can control and what we cannot. I am learning to live between effort and surrender.” Danielle Orner Hello people! So the year of the 2020 blog obviously did not happen for Matt and me. Started off decent and quickly fell off. We were busy but I can’t pointContinue reading “Moving Forward”
Author Archives: guyinawheelchairwithatweedjacket
If You Can Dream
If you can dream — and not make dreams your master;If you can think — and not make thoughts your aim;If you can meet with Triumph and DisasterAnd treat those two imposters just the same. Rudyard Kipling I have to apologize. It has been a busy summer so we have not had a lot ofContinue reading “If You Can Dream”
I love America!
God bless America, land that I loveStand beside her and guide herThrough the night with the light from above. Irving Berlin I think I have mentioned before, but if not let me repeat. I am the granddaughter of an Army officer and a Naval officer. The daughter and niece of Naval aviators. The wife andContinue reading “I love America!”
Solitude
I live in that solitude which is painful in youth, but delicious in the years of maturity. Albert Einstein For most of my life I fed off the energy of being part of the crowd. I have always loved my crew, team, or whatever organized group I have been part of. I can’t think ofContinue reading “Solitude”
Falling Apart
If you’ve ever fallen down and lost your spark, get back up as the whole damn fire. Healing Light Everyone does it. No one has it all together. Not everyone is picture perfect. Even people that say “here is the real me to show you my life is not Instagram perfect” but their “real” pictureContinue reading “Falling Apart”
Correlation Does Not Imply Causation
You never know how strong you are until being strong is the only choice you have. Bob Marley When times are uncertain we want desperately to find a way to convince ourselves that we have things figured out. We are in control. This is why, in the Covid 19 era, there has been an absoluteContinue reading “Correlation Does Not Imply Causation”
Why Are Mosquitoes Even A Thing?
” For the ones who had a notion, a notion deep insideThat it ain’t no sin to be glad you’re alive” Bruce Springsteen The other day JP asked me a question that I was not able to answer. He asked “Dad, why are mosquitoes even a thing?”. Behind that question are so many essential assumptionsContinue reading “Why Are Mosquitoes Even A Thing?”
To Fear or Not To Fear
I refuse to live my life in fear. Fela Kuti World, welcome to life with ALS! Stuck inside your house? Check! Hours spent with only the ones you love? Check! Already binged every worthwhile Netflix series? Check! Worry about catching a respiratory infection that fast turns to pneumonia and you drown in your own mucus?Continue reading “To Fear or Not To Fear”
Be a KIND person
Love could change the world in a momentBut what do I know? What Do I Know? -Ed Sheeran Let’s take a little break from the world of ALS and my thoughts on how to live and love through this disease. It’s healthy to take a break every now and again from anything. Helps gain perspective,Continue reading “Be a KIND person”
Give a Hug
I have learned that there is more power in a good strong hug than in a thousand meaningful words. Ann Hood For some caregivers, maybe most caregivers, the loss of physical affection can be the hardest. Our loved ones, for the most part, keep their mental faculties about them throughout the entire disease. As longContinue reading “Give a Hug”
