It’s not you, it’s me

Of all possessions a friend is the most precious. Herodotus ALS steals more than our loved ones body. It steals time, friendships, relationships.I am going to forget your birthday. I will definitely forget your kids birthday. I won’t text you back in any sort of timely fashion. I will turn down your offer to hangContinue reading “It’s not you, it’s me”

Does Wonderwoman know she’s Super?

“Love is the only engine of survival.” Leonard Cohen People tell me they admire me. It’s a very weird experience for me. I am not comfortable with it. I’m not a particularly admirable person. I’m really quite average. I was thrust into an extraordinary situation and am dealing the best way I know how. SoContinue reading “Does Wonderwoman know she’s Super?”

ALS, Risk Factors, Strategies and How We Live With Them.

If you are reading my blog then you probably already know that certain groups of people are more likely to get ALS than your average couch potato. If not, Google search ALS combined with family history, Veterans, Football players, Fire Fighters, Police, Elite Athletes, or Nice People.  Now that we are all on the sameContinue reading “ALS, Risk Factors, Strategies and How We Live With Them.”

Who comes first?

“Sometimes it’s the smallest decisions that can change your life forever.” Keri Russell When we decided to try for a second child within a year of our first, my friends in Minneapolis asked, “Why?!”. Not because they knew of Matt’s struggle but because our firstborn tends a little to what some might categorize as ‘crazy’.Continue reading “Who comes first?”

A Little Background

“Of all tyrannies, a tyranny sincerely exercised for the good of its victims may be the most oppressive. It would be better to live under robber barons than under omnipotent moral busybodies. The robber baron’s cruelty may sometimes sleep, his cupidity may at some point be satiated; but those who torment us for our ownContinue reading “A Little Background”