To Fear or Not To Fear

I refuse to live my life in fear. Fela Kuti World, welcome to life with ALS! Stuck inside your house? Check! Hours spent with only the ones you love? Check! Already binged every worthwhile Netflix series? Check! Worry about catching a respiratory infection that fast turns to pneumonia and you drown in your own mucus?Continue reading “To Fear or Not To Fear”

How do you love someone who is dying?

“When someone loves you, they don’t have to say it. You can tell by the way they treat you.” Unkown I know what you guys are thinking…Wait! What? Matt’s not dying. You guys are so positive. You say he will beat this disease. There is so much coming for ALS in research and therapies. HowContinue reading “How do you love someone who is dying?”