“Government’s first duty is to protect the people, not run their lives.” Ronald Reagan On to ALS enemy #2 – U.S. Food and Drug Administration. So much could be said about this bureaucratic quagmire. It’s a behemoth of an organization that is so confusing and has an unbelievable amount of red tape. It seems, fromContinue reading “FDA”
Category Archives: Caitlin Blog
ALSA
“People can tell you to keep your mouth shut, but that doesn’t stop you from having your own opinion.” Anne Frank PSA: This is my opinion. Caitlin’s opinion. Matt has advised me otherwise, but a lot of times I don’t follow his advice. My feelings about ALSA. Let me preface this – I am talkingContinue reading “ALSA”
Leaving a Legacy
“Immortality is to live your life doing good things, and leaving your mark behind.” Brandon Lee I need some help. I’m at a loss. I have an idea and no knowledge of how to make it a reality. For those of you who do not know Matt or me that well, we love plants. MattContinue reading “Leaving a Legacy”
Moving Forward
“Life is a balance between what we can control and what we cannot. I am learning to live between effort and surrender.” Danielle Orner Hello people! So the year of the 2020 blog obviously did not happen for Matt and me. Started off decent and quickly fell off. We were busy but I can’t pointContinue reading “Moving Forward”
I love America!
God bless America, land that I loveStand beside her and guide herThrough the night with the light from above. Irving Berlin I think I have mentioned before, but if not let me repeat. I am the granddaughter of an Army officer and a Naval officer. The daughter and niece of Naval aviators. The wife andContinue reading “I love America!”
Falling Apart
If you’ve ever fallen down and lost your spark, get back up as the whole damn fire. Healing Light Everyone does it. No one has it all together. Not everyone is picture perfect. Even people that say “here is the real me to show you my life is not Instagram perfect” but their “real” pictureContinue reading “Falling Apart”
To Fear or Not To Fear
I refuse to live my life in fear. Fela Kuti World, welcome to life with ALS! Stuck inside your house? Check! Hours spent with only the ones you love? Check! Already binged every worthwhile Netflix series? Check! Worry about catching a respiratory infection that fast turns to pneumonia and you drown in your own mucus?Continue reading “To Fear or Not To Fear”
Be a KIND person
Love could change the world in a momentBut what do I know? What Do I Know? -Ed Sheeran Let’s take a little break from the world of ALS and my thoughts on how to live and love through this disease. It’s healthy to take a break every now and again from anything. Helps gain perspective,Continue reading “Be a KIND person”
Give a Hug
I have learned that there is more power in a good strong hug than in a thousand meaningful words. Ann Hood For some caregivers, maybe most caregivers, the loss of physical affection can be the hardest. Our loved ones, for the most part, keep their mental faculties about them throughout the entire disease. As longContinue reading “Give a Hug”
How do you love someone who is dying?
“When someone loves you, they don’t have to say it. You can tell by the way they treat you.” Unkown I know what you guys are thinking…Wait! What? Matt’s not dying. You guys are so positive. You say he will beat this disease. There is so much coming for ALS in research and therapies. HowContinue reading “How do you love someone who is dying?”
