Matt Blog – Tweed Thoughts

Zooming Out

“It is not in the stars to hold our destiny but in ourselves.” William Shakespeare Lately some good friends have encouraged me to consider a whole person approach to not only ALS, but life in general. Ever since I found out I was living with this condition, I became obsessed with science as it relatesContinue reading “Zooming Out”

Another Clinic Visit in the Books

“The anticipated pleasure of success gets us motivated and keeps us motivated. But we need to let our rational plan dictate how we will get there.” Denise Cummins, Ph.D. So I had my clinic visit last week. It still has to be virtual because of Covid restrictions. I decided to ride the elliptical on theContinue reading “Another Clinic Visit in the Books”

Brainstorm

In a world with no shortage of opinions I am not going to burden you with another one. I have been getting a lot of questions about Brainstorm and Nurown this week. I don’t know anymore than you do. I can tell you that the company treated me with as many injections as they couldContinue reading “Brainstorm”

To my friends

Nature works for its own interest and looks to the profit it can reap from another. Grace does not consider what is useful and advantageous to herself. Thomas Kempis There is a school of thought that every human impulse is the result of nature and evolution and that while we think we have free will,Continue reading “To my friends”

If You Can Dream

If you can dream — and not make dreams your master;If you can think — and not make thoughts your aim;If you can meet with Triumph and DisasterAnd treat those two imposters just the same. Rudyard Kipling I have to apologize. It has been a busy summer so we have not had a lot ofContinue reading “If You Can Dream”

Solitude

I live in that solitude which is painful in youth, but delicious in the years of maturity. Albert Einstein For most of my life I fed off the energy of being part of the crowd. I have always loved my crew, team, or whatever organized group I have been part of. I can’t think ofContinue reading “Solitude”

Correlation Does Not Imply Causation

You never know how strong you are until being strong is the only choice you have. Bob Marley When times are uncertain we want desperately to find a way to convince ourselves that we have things figured out. We are in control. This is why, in the Covid 19 era, there has been an absoluteContinue reading “Correlation Does Not Imply Causation”

Why Are Mosquitoes Even A Thing?

” For the ones who had a notion, a notion deep insideThat it ain’t no sin to be glad you’re alive” Bruce Springsteen The other day JP asked me a question that I was not able to answer. He asked “Dad, why are mosquitoes even a thing?”. Behind that question are so many essential assumptionsContinue reading “Why Are Mosquitoes Even A Thing?”

ALS, Risk Factors, Strategies and How We Live With Them.

If you are reading my blog then you probably already know that certain groups of people are more likely to get ALS than your average couch potato. If not, Google search ALS combined with family history, Veterans, Football players, Fire Fighters, Police, Elite Athletes, or Nice People. Now that we are all on the sameContinue reading “ALS, Risk Factors, Strategies and How We Live With Them.”

I Get Hate Mail?

To some this might come as a shock but I actually get quite a few hateful messages from people who are upset that I was able to get access to Nurown while others were not. Here is why I don’t let it bother me and you shouldn’t either. It’s not based in rational thought andContinue reading “I Get Hate Mail?”