Strength does not come from what you can do, it comes from overcoming the things you once thought you couldn’t.” Rikki Rogers Ready for the no-holds-barred truth? No rose colored glasses. No painting a shiny pretty gloss on it. Living with ALS is an absolute nightmare I wouldn’t wish on even my worst enemy. ItContinue reading “Living with ALS”
Author Archives: guyinawheelchairwithatweedjacket
Intramural Sports
Do you know what my favorite part of the game is? The opportunity to play. Mike Singletary Let me preface this whole spiel by saying I am talking about “pay-to-play” leagues. The ones where the parent pays a registration fee and their kid has a spot on a team. There has been a culture shiftContinue reading “Intramural Sports”
Hidey-ho Neighbor
Every person needs to take one day away. A day in which one consciously separates the past from the future. Jobs, family, employers, and friends can exist one day without any one of us, and if our egos permit us to confess, they could exist eternally in our absence. Each person deserves a day awayContinue reading “Hidey-ho Neighbor”
Zooming Out
“It is not in the stars to hold our destiny but in ourselves.” William Shakespeare Lately some good friends have encouraged me to consider a whole person approach to not only ALS, but life in general. Ever since I found out I was living with this condition, I became obsessed with science as it relatesContinue reading “Zooming Out”
Under Pressure
Mistakes and pressure are inevitable; the secret to getting past them is to stay calm. Travis Bradberry Y’all, I did a thing. I applied to Temple University and I got in. For the Fall Term. Like in 3 months I will be in college again. Matt has been bugging me for years to go backContinue reading “Under Pressure”
Another Clinic Visit in the Books
“The anticipated pleasure of success gets us motivated and keeps us motivated. But we need to let our rational plan dictate how we will get there.” Denise Cummins, Ph.D. So I had my clinic visit last week. It still has to be virtual because of Covid restrictions. I decided to ride the elliptical on theContinue reading “Another Clinic Visit in the Books”
FDA
“Government’s first duty is to protect the people, not run their lives.” Ronald Reagan On to ALS enemy #2 – U.S. Food and Drug Administration. So much could be said about this bureaucratic quagmire. It’s a behemoth of an organization that is so confusing and has an unbelievable amount of red tape. It seems, fromContinue reading “FDA”
ALSA
“People can tell you to keep your mouth shut, but that doesn’t stop you from having your own opinion.” Anne Frank PSA: This is my opinion. Caitlin’s opinion. Matt has advised me otherwise, but a lot of times I don’t follow his advice. My feelings about ALSA. Let me preface this – I am talkingContinue reading “ALSA”
Brainstorm
In a world with no shortage of opinions I am not going to burden you with another one. I have been getting a lot of questions about Brainstorm and Nurown this week. I don’t know anymore than you do. I can tell you that the company treated me with as many injections as they couldContinue reading “Brainstorm”
Leaving a Legacy
“Immortality is to live your life doing good things, and leaving your mark behind.” Brandon Lee I need some help. I’m at a loss. I have an idea and no knowledge of how to make it a reality. For those of you who do not know Matt or me that well, we love plants. MattContinue reading “Leaving a Legacy”
Tweed Thoughts 