“Love is the only engine of survival.” Leonard Cohen People tell me they admire me. It’s a very weird experience for me. I am not comfortable with it. I’m not a particularly admirable person. I’m really quite average. I was thrust into an extraordinary situation and am dealing the best way I know how. SoContinue reading “Does Wonderwoman know she’s Super?”
Category Archives: Blogs
ALS, Risk Factors, Strategies and How We Live With Them.
If you are reading my blog then you probably already know that certain groups of people are more likely to get ALS than your average couch potato. If not, Google search ALS combined with family history, Veterans, Football players, Fire Fighters, Police, Elite Athletes, or Nice People. Now that we are all on the sameContinue reading “ALS, Risk Factors, Strategies and How We Live With Them.”
Who comes first?
“Sometimes it’s the smallest decisions that can change your life forever.” Keri Russell When we decided to try for a second child within a year of our first, my friends in Minneapolis asked, “Why?!”. Not because they knew of Matt’s struggle but because our firstborn tends a little to what some might categorize as ‘crazy’.Continue reading “Who comes first?”
I Get Hate Mail?
To some this might come as a shock but I actually get quite a few hateful messages from people who are upset that I was able to get access to Nurown while others were not. Here is why I don’t let it bother me and you shouldn’t either. It’s not based in rational thought andContinue reading “I Get Hate Mail?”
It’s Going to Be OK
“She is clothed with strength and dignity, and she laughs without fear of the future.” Proverbs 35:21 April 8, 2014…it was just a day. It was a day that had been coming for nearly 18 months. It was a day we could finally breath again. It was the day Matt was officially diagnosed with ALS.Continue reading “It’s Going to Be OK”
A Little Background
“Of all tyrannies, a tyranny sincerely exercised for the good of its victims may be the most oppressive. It would be better to live under robber barons than under omnipotent moral busybodies. The robber baron’s cruelty may sometimes sleep, his cupidity may at some point be satiated; but those who torment us for our ownContinue reading “A Little Background”
